On Friday, May 30th, staff from the Southeast Pennsylvania Lincare Centers received a unique opportunity to deepen their understanding of Amyotrophic Lateral Sclerosis (ALS) through an exclusive tour of the ALS Clinic and Research Center at the Penn State College of Medicine. Comprised of managers, clinicians and sales personnel, the team learned about cutting-edge research and innovative treatments aimed at better supporting patients with this challenging condition.
The tour highlighted three critical areas of ongoing research: treatments and trials for ALS medications; the integration of technology into patient care; and improving the overall understanding of ALS, also referred to as TDP-43, a protein implicated in neurodegenerative diseases. Attendees were particularly intrigued by the laboratory’s innovative “fly to human” approach, which employs fruit flies to study various neurodegenerative diseases, including ALS, frontotemporal dementia (FTD), Alzheimer’s disease, Parkinson’s and traumatic brain injury.
Fruit flies present a fascinating research model, as according to the Penn State staff, they share approximately 75% of human genes. This allows researchers to make critical comparisons and draw valuable parallels in their studies. The fruit flies short generation time and robust genetic makeup make them an essential tool for studying the biological mechanisms of disease. The striking similarities in the nervous system and muscular development of fruit flies and humans provide a remarkable framework for understanding how ALS and similar conditions progress.
As Lincare staff explored the lab and heard from researchers on their latest findings and ongoing studies, they gained fresh perspectives on ALS that will enhance their knowledge to support patients facing this disease. Lincare is dedicated to supporting these individuals through comprehensive services, including respiratory therapy, home medical equipment, and nutrition services. Our goal is to improve health-related quality of life, promote independence and uphold the dignity of every patient we serve during the progression of their disease. Southeast PA Area Manager, Jennifer reflected on the experience stating, “We truly appreciate the opportunity to meet the research team and witness the dedication put into finding new ways to treat ALS patients. It was a great learning experience for our team to gain knowledge and understanding of how we can help support our patients through their ALS journey”
This visit marks an essential step in keeping our staff informed and ready to meet the needs of those battling ALS and other neurodegenerative diseases. With ongoing education and continued interactions with leading research centers, Lincare remains committed to the well-being of our patients and their families.
For additional details, please explore the ALS links provided below: